Well our little Guy has come a long way! This is how he plays "Where's Carson". He gets so Excited! Showing off his "more" and "all done" skills too.
"The central struggle of parenthood is to let our hopes for our children outweigh our fears." (Ellen Goodman)
Tuesday, February 22, 2011
Saturday, February 19, 2011
3rd Times A Charm?
So this is officially the 3rd time I'm tried to start a blog in the last few years and hopefully it'll be the charm! We are slowly getting adjusted to life in the glorious state of Iowa. We have been busy getting Carson's new doctors and therapies set up, but finally that seems to be headed in the right direction. We have started seeing Dr R (GI) at the University of Iowa. As of yesterday he has officially refereed us to a Hematologist and Pediatric Surgeon at the U and we are waiting on a calls for an appointment with them. We can now check local Pediatrician off the list as I finally made contact with them yesterday and they're working on getting records sent from Denver. We also have had appointments with Early Intervention Counselor & OT. They're working on setting us up appointments for our Social Worker & Nutritionist. I've always said that Carson's "Stuff" could be a full time job...And that was when we were figuring it out piece by piece. Starting it all over again, making contact with everyone all over again/at the same time seems like it could be two full time jobs!
It's been very interesting to us to see the difference in care for Carson with this change in doctors. Back in Denver our GI (Dr S) there seemed much more laid back about Carson's blood clot, but the doctor here wants to do more testing/monitoring/meeting with surgeons. Dr S was way more worried about Failure to Thrive and Dr R seems much more worried about the PVT. Which is right? I have no idea as I'm not a doctor, but Dr R has explained everything to us very clearly and everything he tells me is what I know to be true from research I've done. Which approach is right...I have no idea, but I'm not a wait and see type of person so I guess I'm trusting Dr R at this point.
Test results from our Iowa City appointment a few weeks ago. CBC looked "better" relatively from the last time blood was drawn. His WBC was a 2.6 which is a tad higher than it has been so that's a little step in the right direction (normal is 4.5 I'm pretty sure). All his other blood counts were normal or very close to it. Liver function was a little wacky which is to be expected because of the strain the blood clot places on it. Started him on Mephyton once weekly for Vitamin K to see that corrects one of the test that was not quite right? Not sure what that was. He noticed that something (I don't remember what?) was low back when they did tests in Denver a long time ago that may be the reason that Carson got the clot and he can't see if it was ever rechecked to make sure that whatever it was went back up...If this "thing" never went back up Carson is more prone to blood clots and will need to be put on medication to prevent them. This is why he referred us to hematology...He wants them to check him out/run whatever tests need to be run. He wants us to meet with the pediatric surgeon team so they can evaluate Carson and see what they think about if/when Carson would be a good candidate for a shunt. This would be a major surgery so we pray that they will think it's not needed at this time/for a long time/ever!
So much more information that we've ever gotten from a doctor before is good, but a little over whelming for me. Feel a little like we've started the whole process over again a year later, but as long as our Guy is alright that's all the matters. Makes me think we should have gotten a second opinion much sooner!
Kay is adjusting to live in Iowa very well. Loves having her daddy home with her all day with her and being able to spend time with her Aunts, Uncles, Cousin, Gradmas & Grandpas! This week we got to play with the Bill, Heather, Parker & Lexi on Sunday. Grandpa came down on Tuesday. Thursday we went to AJ's Basketball game in Williamburg with Gma, Gpa, Abs, Em & Aj. Saturday Gma babysat while Gpa, AJ, Em & Dave went to the Hockey Game at the I-Wireless Center. So as you can see she's gotten lots and lots of family time which she just loves!
Time for another wonderful Mallards game tonight so back to work.
It's been very interesting to us to see the difference in care for Carson with this change in doctors. Back in Denver our GI (Dr S) there seemed much more laid back about Carson's blood clot, but the doctor here wants to do more testing/monitoring/meeting with surgeons. Dr S was way more worried about Failure to Thrive and Dr R seems much more worried about the PVT. Which is right? I have no idea as I'm not a doctor, but Dr R has explained everything to us very clearly and everything he tells me is what I know to be true from research I've done. Which approach is right...I have no idea, but I'm not a wait and see type of person so I guess I'm trusting Dr R at this point.
Test results from our Iowa City appointment a few weeks ago. CBC looked "better" relatively from the last time blood was drawn. His WBC was a 2.6 which is a tad higher than it has been so that's a little step in the right direction (normal is 4.5 I'm pretty sure). All his other blood counts were normal or very close to it. Liver function was a little wacky which is to be expected because of the strain the blood clot places on it. Started him on Mephyton once weekly for Vitamin K to see that corrects one of the test that was not quite right? Not sure what that was. He noticed that something (I don't remember what?) was low back when they did tests in Denver a long time ago that may be the reason that Carson got the clot and he can't see if it was ever rechecked to make sure that whatever it was went back up...If this "thing" never went back up Carson is more prone to blood clots and will need to be put on medication to prevent them. This is why he referred us to hematology...He wants them to check him out/run whatever tests need to be run. He wants us to meet with the pediatric surgeon team so they can evaluate Carson and see what they think about if/when Carson would be a good candidate for a shunt. This would be a major surgery so we pray that they will think it's not needed at this time/for a long time/ever!
So much more information that we've ever gotten from a doctor before is good, but a little over whelming for me. Feel a little like we've started the whole process over again a year later, but as long as our Guy is alright that's all the matters. Makes me think we should have gotten a second opinion much sooner!
Kay is adjusting to live in Iowa very well. Loves having her daddy home with her all day with her and being able to spend time with her Aunts, Uncles, Cousin, Gradmas & Grandpas! This week we got to play with the Bill, Heather, Parker & Lexi on Sunday. Grandpa came down on Tuesday. Thursday we went to AJ's Basketball game in Williamburg with Gma, Gpa, Abs, Em & Aj. Saturday Gma babysat while Gpa, AJ, Em & Dave went to the Hockey Game at the I-Wireless Center. So as you can see she's gotten lots and lots of family time which she just loves!
Time for another wonderful Mallards game tonight so back to work.
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