SMO's & Surgery

Oh what a week it's been!

This morning we had PT come out and see Carson because of his falling.  We thought it seemed like more than "normal clumsiness" of an almost 2 year old and I guess we were right.  Ms Bea (PT) noticed much more pronation of Carson's feet then he had when she evaluated him 6 weeks ago.  It basically means his ankles lean inward.  She gave us some Supra-Malleolar Orthosis (SMO's) to try out Suresteps.  We walked outside with them on and Carson only fell down once...Pretty amazing for him.  Not sure if this will even be an option for us to actually buy because of the price, but we will try them for as long as they'll let us barrow the pretty purple and pink ones our PT left at our house to try.  It says very clearly on our insurance's website that they are not covered, but I think I'll probably call and try anyway.

Dr P also called this afternoon.  I missed his call, but he gave me his office number that I called back and he answered the phone...Again amazing to me.  He is ready to schedule the surgery.  He said the other test he had talked about doing isn't really needed because it's unreliable.  The test still doesn't show the area very well and if they don't see the vein with the test they still don't definitely know anything so he'd still recommend surgery.  He is out of town the first week of May and doesn't want to be gone right after Guy's surgery so we are going to wait until he is back, probably middle to end of May sometime.  I should hear from his office soon the schedule it.  We will be in the hospital for 5-10 days and the surgery will take 2-4 hours depending on everything.  I asked him about anticoagulant meds that I talked to the Hematologist about and he said they normally do Lovenox injections as presurgery therapy so Carson will officially be on blood thinners in the near future.  How long he will stay on them after surgery is still unknown.  So we will be able to add "Daily Shot for our Kid" to the list of things that we have done that "normal" parents don't "get" to do.   

Now we need to officially ask for prayers.  Prayers for Carson to come through surgery without any complications and prayers that the surgery is successful.  There is a chance that they open Carson up and find out the everything is not right and they can't do complete the shunt.  Please pray with us that this is not what happens, that Carson has all the right pieces inside him to create the shunt and make it work!

I am officially 100% over this week.  I'm ready for it to be the weekend when no doctor, nurse, therapist, dietitian or scheduler will call us and we can just hang out with our kids and on Sunday with the family for Easter. 

Oh and Carson has a cold.

Hope everyone gets to spend time with Family this weekend and has a Great Easter!